Banner Option FL

Join Us for Our 2025 GSA Conference!

We are thrilled to invite you to the 2025 Gorlin Syndrome Alliance (GSA) Conference, taking place June 20–22, 2025, at the Holiday Inn Orlando – Disney Springs, an official Walt Disney World hotel.

For the first time ever, the GSA will offer Conference Registration Reimbursements and Travel Scholarships to offset some of the costs of attendance for qualifying individuals and families. If cost has been a barrier to attending our past conferences, please consider applying.

We are also collaborating with Camp Wonder to provide an opportunity for children with Gorlin syndrome to attend summer camp—for free—and later join their families at the conference.

Registration

Thanks to a sponsorship from Sun Pharma, registration is now $50/adult and FREE for all kids under 13! 

Hotel bookings are now available. Our group room rate is $134/night plus a $39 nightly resort fee. Booking with the GSA link will reduce the nightly resort fee to $30 upon checkout.

Conference Registration
Book Your Hotel Room
Who is the conference for:

Anyone whose life has been impacted by Gorlin syndrome:

  • Adults with a new diagnosis or veterans interested in the latest research and treatments
  • Parents, partners, and caregivers
  • Children with Gorlin syndrome and their siblings
  • Medical professionals who treat Gorlin syndrome
  • Researchers and industry professionals interested in learning more

Group childcare will be available at the hotel during conference presentations. 

Why you should attend:

Since its first meeting over 20 years ago, the Gorlin Syndrome Alliance Conference has been a place where people impacted by Gorlin syndrome can connect with others who share their experiences. The conference provides opportunities to:

  • Build relationships and interact with other patients and caregivers
  • Interact with researchers
  • Learn about the latest scientific developments
  • Become expert patients and caregivers

This year, attendees will also help prioritize Gorlin syndrome research, ensuring that we focus on projects with the biggest benefits for the community.

What Is “Our Story, Our Science”?

Everything the GSA does is aimed at improving the quality of life for patients and families affected by Gorlin syndrome. Your stories, experiences, and questions guide the selection of speakers and topics at the conference. Patients who contribute to the GSA Patient Registry enable researchers to discover and publish novel findings about the disease. This year, patients will also help us shape the future of Gorlin syndrome research. 

Schedule:

  • Thursday, June 19: Arrive and check in to the Holiday Inn Orlando – Disney Springs at your convenience.

  • Friday, June 20: Conference check-in, breakfast, introductions, followed by presentations, discussions and lunch. Conference programming will end by 4PM.

  • Saturday, June 21: Breakfast, lunch, presentations, workshops, opportunities to ask questions of visiting physicians, complete the patient registry, and participate in discussions with industry representatives and researchers. Conference programming will end by 4PM.

  • Sunday, June 22: Breakfast, conference wrap-up before noon.

A more detailed agenda will be available soon! 

Program at a glance (36 x 21 cm)
IMG_6599

Camp Wonder to GSA Conference Opportunity for Families

Summer camp can be a transformative experience for children. Parents want their children with Gorlin syndrome to experience the joy of summer camp, but they also need reassurance about enhanced sun safety practices. We can make that happen.

In 2025, families will have the unique opportunity to send their children with Gorlin syndrome to a summer camp in Georgia that provides enhanced sun safety. The Children’s Skin Disease Foundation generously covers all costs, including travel expenses, making this a priceless experience for families. Best of all, the children’s return flights can be scheduled to bring them and their new camp friends directly to Orlando to join the conference.

Camp Wonder is a summer camp for children aged 6–16 with any skin disease living in North America. For over two decades, it has provided a supportive environment for children in the GSA community. Camp Wonder fosters acceptance and empowerment, allowing children to be themselves without feeling limited by their skin condition.

Camp Wonder Dates: June 15-20, 2025 in Rutledge, Georgia.

Learn more about Camp Wonder

Registration Reimbursement

We want everyone with a Gorlin syndrome diagnosis to have the opportunity to attend one of our conferences. To make attendance more accessible, the GSA is offering Conference Registration Reimbursements to community members who meet the requirements. The fund is limited, so early application is encouraged. 

Travel Scholarships

A limited number of Travel Scholarships are available to families and individuals for whom cost is a barrier to attendance.  Awards will be made in the order applications are received, and the application will close once the fund is exhausted.

Registration Reimbursement- Apply Now!
Travel Scholarships- Apply Now!

Attractions and Information

 
Sponsorship Opportunities

To learn more about sponsorship opportunities, please contact Dina Scalone at dscalone@gorlinsyndrome.org.

 

Register for the 2025 Conference Now!

Thank You, Sponsors!

Sun_Pharma_logo.svg
nei